《我们的诅咒》Our Curse

 

《我们的诅咒》

《我们的诅咒》Our Curse

《我们的诅咒》是导演的个人自传,讲述的是他与妻子如何学习与他们患有罕见病症的新生儿利奥生活的故事。这种疾病被称为代恩的诅咒,科学上称为先天性中枢性低通气综合征。当患者睡着时,可能会引起呼吸停止并且无法愈治。虽然医生向这对夫妻称这是“一个很酷的挑战”,但是他们确实很难搞定它。导演Tomasz Sliwinski用摄像机记录了在医院的生活日记,在家的第一天、第一次远足以及其他日常活动,其间还穿插着他和妻子表达想法和恐惧声音的场景。他们必须依靠自己来照料孩子,他没有隐藏重症监护的镜头,这些都真实的记录了生死之间的区别。这部纪录片的紧跟着这个家庭正在经历的进程,渐渐地,他们有关生死存在的考虑消失了,观众看到的则是一个与任何“正常家庭”别无二致的家庭生活画面。

《我们的诅咒》Our Curse

导演/剧本:Tomasz Sliwinski
摄影:Tomasz Sliwinski、Magda Hueckel
剪辑:Tomasz Sliwinski、Justyna Król
制片:Maciej Slesicki
波兰/2013年/彩色/DCP/27分钟

 

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Our Curse

《我们的诅咒》Our Curse

Our Curse is the director's personal story about himself and his wife as they learn to live with their newborn son Leo's rare medical condition. The disease is called Ondine's curse, scientifically referred to as Congenital Central Hypoventilation Syndrome. It causes the sufferer to stop breathing when he or she falls asleep, and there's no cure for it. Though the doctor sends the couple home talking of Leo's illness as "a cool challenge," they can hardly get their heads around it. Director Tomasz Sliwinski uses the camera as a diary in which visits to the hospital, the first day at home, the first outing and other daily activities are interspersed with scenes in which he and his wife voice their thoughts and fears. He doesn't hold back from capturing the intensive care that they must offer their son on their own - care that is truly the difference between life and death. The documentary's form would seem to follow the process that this family is going through. Gradually, their existential considerations disappear and we only see images like in the home movies of any "normal" family.

 

Director/Screenplay: Tomasz Sliwinski
Cinematography: Tomasz Sliwinski, Magda Hueckel
Editing: Tomasz Sliwinski, Justyna Król
Poland, 2013, color, DCP, 27'

Production
Maciej Slesicki for Warsaw Film School

 

相关电影节
2013阿姆斯特丹国际纪录片电影节(IDFA 2013)
2014第21届谢菲尔德纪录电影节(Sheffield Doc/Fest 2014)
2014国际华人纪录片影展(Taipei Documentary Film Festival 2014)

 

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